"Hope, like the gleaming taper’s light, Adorns and cheers our way;
And still, as darker grows the night, Emits a brighter ray."

— Oliver Goldsmith (1730?–1774)






CMLSupport.com Health Tips




  • It's not too late to get a flu shot this season. And as always seems to be the case, this is expected to be a severe flu season. Even if you think you're one of those people who "never" gets sick (well, except for CML!), you should still get a flu vaccination. And remember, the vaccine is a killed vaccine, not live, so it can't give you the flu. Do not use the new FluMist vaccine, as that does contain live virus. People with allergies to eggs should not have the vaccine. Talk to your doctor about getting the vaccine. Vaccination protects you and the general community.

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  • Don't forget your sunscreen. Whether you're heading for the beach, working in the garden, or just going for a bike ride, put on sunscreen. It's especially important for people taking medications to limit sun exposure. Many medications can increase your sensitivity to the sun and make you more likely to develop sunburn. Among those drugs are antibiotics, nonsteroidal anti-inflammatories, and perhaps imatinib mesylate (Gleevec). In addition, some people who've experienced depigmentation while taking imatinib have seen that effect made worse with sun exposure

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  • When you're taking medications, it's important for your doctor to be aware of all other medications you're taking, including over-the-counter pain relievers and any nutritional supplements, including vitamins, minerals and herbals. Remember, just because the product says it's natural doesn't mean it's necessarily safe for you. Even some foods, such as grapefruit, can interact negatively with medications. For information about medications you are taking, including drug interactions, check out Mayo Clinic's drug search, featuring Micromedex.

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  • It's flu season, and that means you should have gotten your flu vaccine by now. But if not, it's not too late yet. It's too early to tell how severe this flu season will be. But people with cancer or chronic illnesses are at high risk of getting the flu, and having a worse case. It can lead to life-threatening complications. The flu season in the United States generally begins in October and lasts through March or April, with peak intensity occurring between late December and early March. October and November are the best months to receive the vaccine, but there's still time to benefit from vaccination. The vaccine is a dead vaccine, not live, so you cannot get the flu from the vaccine. In addition, talk to your doctor about a pneumonia vaccine.

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  • St. John's wort and chemotherapy do not mix. A new study, published in the Journal of the National Cancer Institute's Aug. 21, 2002, issue, shows that the herbal supplement can jeopardize the effectiveness of cancer treatment by speeding up the metabolism of the chemotherapy drug Camptosar, which compromises its tumor-fighting capabilities. Cancer patients are among the most likely to use complementary and alternative medical remedies, such as herbal supplements, in hopes of reducing side effects of conventional treatments or otherwise improving their quality of life. But this new study shows that people on chemo should avoid St. John's wort. It might also inhibit the effectiveness of other chemo medications, such as Taxol.

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  • Are you protecting your kids against cancer? If you're not slathering them with sunscreen, not making sure they wear sunglasses, and letting them get burned, you're not doing all you should be doing to protect them from future deadly skin cancer. According to the American Cancer Society, an estimated 53,600 Americans will be diagnosed with melanoma, the deadliest form of skin cancer, this year. Of those diagnosed, nearly 10,000 are expected to die from it. There's a growing body of evidence to suggest that sunburns at a young age lead to heightened risk of developing skin cancer later in life. A tan might look healthy, but what it means is that you've damaged your skin — or your child's. And don't forget to make sure your kids are protected while at school.

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  • Want to add another magazine to your library? How about Coping with Cancer magazine? Learn more about the magazine on the Coping Web site. What it says about itself: "Now celebrating its 15th Anniversary of providing knowledge, hope and inspiration, its readers include cancer patients (survivors) and their families, caregivers, healthcare teams and support group leaders." Another one to check out is the new magazine CURE, just coming out with its first issue. CURE, Cancer Updates, Research, and Education, is a magazine developed for individuals coping with cancer and blood disorders. Know of other cancer-related consumer magazines? Let me know so I can pass them along.

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  • Yes, even cancer patients need to follow healthy eating and exercising strategies. Shape Up America! might be able to help. What is it? Shape Up America! is a national initiative to promote healthy weight and increased physical activity in America and includes a broad-based coalition of industry, medical/health, nutrition, physical fitness, and related organizations and experts. Through its Web site, you can find out the latest information about safe weight management, healthy eating, increased activity and physical fitness. Learn about your body fat percentage (we dread this as much as you!) and barriers to weight management. And be sure to check out the CyberKitchen for a healthy eating lifestyle.

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  • Five new cancers have been added to the list of diseases presumed to be connected to the exposure of veterans to radiation during their military service. Veterans diagnosed with cancer of the bone, brain, colon, lung or ovary will have an easier time establishing entitlement to compensation for their illnesses beginning March 26, 2002. The new rules apply to those veterans who participated in "radiation-risk activities" while on active duty, during active duty for training or inactive duty training as a member of a reserve component. Under current statutes, the following diseases are presumed to be service connected if the veteran participated in a radiation-risk activity: leukemia (other than chronic lymphocytic leukemia), cancer of the thyroid, breast, pharynx, esophagus, stomach, small intestine, pancreas, gall bladder, bile ducts, salivary gland, or urinary tract, multiple myeloma, lymphomas (except Hodgkin's disease), primary cancer of the liver (except if cirrhosis or hepatitis B is indicated) or bronchiolo-alveolar carcinoma. Veterans or their survivors can file claims for compensation by contacting a VA regional office at (800) 827-1000 or visiting VA's Website.

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  • The American Cancer Society is developing policy statements on pain management now that some states are instituting regulations that may prevent cancer patients from obtaining treatment for their pain. If you have had an experience in which you could not get adequate pain relief, please describe the facts and send to ggreer@cancer.org. Your statement or "testimony" may help advocate for policies that guarantee appropriate treatment of cancer-related pain. For more information about pain management, see our Pain Center.

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  • Can't make heads or tails of your lab tests? Not sure what the numbers or acronyms mean? The Lab Tests Online Web site might help. Here's what the site says about itself: "Like many areas in medicine, clinical lab testing often provides few simple answers to commonly asked questions. The issues — on topics like insurance reimbursement and reference ranges — can be very complex. While we can't offer the kinds of short, easy answers that we seem to be accustomed to in this information age, we have attempted in the following articles to break down the issues in a way that will help you to understand the issues a bit better, and perhaps, to ask the appropriate questions of your doctor."

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  • The 1996 Mental Health Parity Act expired on Oct. 1. A new and improved bill to make sure mental health coverage in group plans is on a par with medical and surgical benefits is winding its way through Congress. On Oct. 30, the U.S. Senate passed an amendment to the FY2002 Labor, Health &, Human Services, and Education Appropriations bill, based on the Mental Health Equitable Treatment Act (S.543), introduced by Sens. Pete Domenici (R-NM) and Paul Wellstone (D-MN). The legislation now requires approval by a conference committee between the Senate and House of Representatives. Those who have waited for this moment can take heart that action should be completed by Thanksgiving. The amendment would prohibit discrimination against mental illness by group health insurance plans. For more information, click to the National Alliance for the Mentally Ill.

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  • The Kaiser Family Foundation has launched a comprehensive state-by-state resource on health, with information about managed care and insurance, Medicare, Medicaid, medical costs, and lots more. For information, click to KFF's State Health Facts Online.

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  • The American Institute for Cancer Research is offering a free 20-page brochure on "Nutrition and the Cancer Survivor," with information on the diet-cancer connection, tips on evaluating nutritional information and detailed information about specific foods and supplements. The new brochure is a companion to another free brochure, "Nutrition of the Cancer Patient," which focuses on dietary advice for people undergoing cancer treatment. For a free copy, call 800-843-8114, Ext. 02, weekdays between 9 a.m. and 5 p.m.

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  • Be extra careful if you are applying for an individual health insurance policy on your own, and not a group plan through an employer. If you are not honest about all of your medical problems, the health insurance company can rescind your policy, and your outstanding medical claims will not be covered. In some states, such as Florida, the policy can be declared null and void from the start date, and you could become responsible for all back medical expenses.

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  • With the recent approval of Gleevec, there are some suggestions, even coming from Novartis itself, to look for a health insurance company that covers prescription medications. Remember, DO NOT drop your current health coverage without having a new contract ready to begin. Also bear in mind that laws in many states allow health insurers selling individual coverage to deny coverage to people with pre-existing conditions like cancer. If you have group coverage through an employer, chances are you cannot enroll in a new plan until the open enrollment period.

    Make sure you have your health insurer's phone number. Make sure you understand its prescription coverage policy. And its appeal policy. Find out, if you can, how quickly your health insurer adds newly approved drugs to its formulary (the list of drugs it will cover). If there's a delay, consider getting a letter from your doctor stating the need for this drug so you can get a prescription anyway.

    Find out what your copayments are. Find out if you can get a three-month supply at once instead of just a one-month supply, so that you won't be paying as much out of your own pocket each month.

    If you don't have a case manager at your health insurer, it might be wise to insist upon getting one. I had quite a battle over this, as my insurer contended I didn't need one. But it pays off to have someone there in a higher-ranking position who knows your case and can intervene when a customer service rep isn't helping.

    Remember that it's very possible in dealing with a customer service rep at your insurer that they know less about your coverage than you do. That's why you really *must* get a copy of your **subscriber agreement** (the entire coverage document) and read it carefully. Also remember that if you call your insurer eight times, you could get eight different answers. Document all your phone conversations — name of the rep, time, date, etc.

    You should also familiarize yourself with the laws in your state. There are very few national health insurance laws; most insurance coverage is governed at the state level. That's why it's very difficult here on this list to compare coverage to each other, even if you have the same health insurer. What Blue Cross covers in one state might not apply to its coverage in another state. Most states have extensive information about your insurance rights (and responsibilities) on their state insurance department Web sites. If you need help finding them, let me know.

    This is a lot of work. But as you know, when it comes to health care, you must know what your rights are and be prepared to advocate for them yourself. Remember, no one cares as much about your coverage as you do.

    If you don't have health insurance, you'll have to investigate the various programs available for subsidizing coverage. Virtually every drug company has a program like this. And there are also consumer groups that can help.

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  • Wondering how your health plan stacks up against others in the United States? Want to find out how it rates on customer service? Complaints? If you have access to the care you need? And how well it'll take care of you if you get sick? Check out the National Committee for Quality Assurance. The NCQA is a private, nonprofit association committed to improving the quality of America's health care. Among the many features it offers is an interactive tool designed to help you find the health plan that's right for you — or to check up on your existing plan.

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  • If you're battling a chronic or serious illness, keep a separate health journal. In it, you can track such things as your blood counts, meds, side effects, questions for your doctors, insurance issues, important Web sites, books, and other resources. It's a good way to spot trends in your illness, too. Solutions catalog offers a 10-year journal that makes it especially easy to jot down quick notes on your illness each day and compare it to prior years.

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  • Know someone with cancer but not sure how to help? Here are a few ideas: Don't ask if they want you to wash their car, walk their dog, shovel their stoop or other similar favors, because chances are they'll say no, hoping not to be a burden. To borrow from Nike, just do it. Call to say hello, even when you know you'll get their voice mail. Don't insist they keep their chin up. And don't tell them, "We could all get hit by a bus tomorrow and die." It's not really comforting to tell them they have cancer and they could get hit by a bus.







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